Scientific
Syndactyly FAQ: Choosing a Hand Surgeon
Choosing the hand doctor is a very important decision. While there is no one right way to choose a hand surgeon, there are some things you…
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Syndactyly FAQ: What sorts of specialists will be involved in my baby’s care?
At the very least, your child will be treated by the hand surgeon and a certified hand therapist. In addition, a geneticist and developmental pediatrician…
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Syndactyly FAQ: What is done between the time my baby is born and the first surgery?
You will meet with your surgeon soon after your baby is born. In some cases, diagnosis is made prenatally by ultrasound exam, and you may…
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Syndactyly FAQ: What is the Treatment for Babies with Syndactyly?
While every patient is treated individually, with treatment plans made specifically for him or her, some generalizations are possible. Syndactyly is treated surgically, with an operation…
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Is Syndactyly Genetic?
The best answer here is yes, no and sort-of: Most cases of syndactyly, that are not associated with a syndrome, are sporadic or without a known…
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Scar Care
Scar tissue and grafts take a long time to heal and can change over time making them a challenge to patients and parents. If not cared…
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Web Creep (Post-Op)
Web creep is a possible complication of syndactyly reconstruction. Simply explained, creep occurs when the web space (commissure) continues to grow giving the appearance of an…
Read MoreAnnouncement, Awareness, Patient, Research, Scientific
NFS now listed in Disease InfoSearch Database
The National Foundation for Syndactyly has now been listed in the Disease InfoSearch, a trusted resource for more than 7,000 diseases and the organizations dedicated to…
Read MoreFamily, Personal Journey Series, Success, Treatment
Jennifer’s Story (Simple Complete Syndactyly)
Brendan was born on 2/15/2013. He was our 4th child and he is our 3rd boy. He weighed 10 pounds 1 oz, and still wasn’t ready…
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Kelly’s Story (Simple Complete Syndactyly)
At our 20 week ultrasound, we went in excited to find out the sex of our baby and left with news that there was most likely something…
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